Sunday, July 5, 2009

Important announcement! I am meeting with the Cancer Council NSW in Feb to plan what can be done for YACs in Australia! [January 16 2009]

It's offical, I have been booked in to meet for a day with various members of the Cancer Council NSW (TCCN) present the findings from my study and have a planning session that will detail what and how they can help YACs in Australia.


I hope that this is a defining moment in the young adult and cancer movement here in Australia.

I am very, very excited about the prospects of having such a wonderful organisation which has some very inspiring staff members who work in various divisions of the TCCN, whom I think are equally as excited to get the ball rolling for YACs in Australia

Three cheers for the CC

HIP HIP HOORAY!
HIP HIP HOORAY!
HIP HIP HOORAY!

MY STUDY IS FINISHED [Nov 26 2008]

Finally... after 12 months of planning, research and committment my study is complete. I would like to share the results of my study, 'The Lived Experience of Young Adults with Cancer (aged 25-44 years) in Australia" here in this blog.

Statement of Results: The Lived Experience of Cancer and Young Adults (aged 25 - 44 years) in Australia

This phenomenological study described the impact that cancer had on the lives of thirteen young adults with cancer (YACs), to provide new knowledge and understanding about the issues that affect this population, and to help inform and shape appropriate cancer-care support services for this age group. There were a broad range of personal factors that defined the experience of cancer for a YA. In some cases, the immediate and long term implications were related to the severity and varied backgrounds in the biological factors of their cancer, yet in others, it was indicative of unrelated and more elusive factors. Two main areas of discussion emerged which enabled the development of two essential themes* for YACs:

1. Personal experiences.

2. Conjoined experiences.


A personal experience includes aspects such as the way a YAC uniquely characterises and feels about their cancer and the manner in which they choose to place it within their lifeworld. This area is related to issues of 'themselves' such as the fear and emotions felt when diagnosed, how a YAC views their life and surroundings, and how the values for a YAC might change after having cancer. A conjoined experience on the other hand suggested the way that cancer may alter existing relationships for the YAC, or the way in which new connections formed as a result of having cancer. It is this second theme that sets young adults apart from children, adolescents and older people with cancer, as for example, with the fact that YACs tend to have extended relationships and interactions with other people such as partners and work relationships. In addition to these main themes, a number of sub themes were identified.

For the personal experience, there were three subthemes that emerged:

(1) Impact: cancer has an immediate effect on the YAC as a person;

(2) World View: cancer affects the way a YAC chooses to view their world; and

(3) Self Expression: having cancer exposes needs, wants and desires for a YAC.


For the conjoined experience the subthemes are divided two ways:

(1) Current links: the relationships already existing in a YAC's life are altered in some way; and

(2) New links: new connections form as a result of having cancer as a young adult.


*It is important to note even though there are clear, well-defined overarching themes and subthemes, there is a vast amount of overlap and interrelated components between these.

----------------------------------------------------------------------------------------------
I welcome any of your comments and thoughts.

Nikki

Tuesday, February 26, 2008

Go to this link for all Young Adult Cancer wroldwide related stuff....

Hi guys,

Planet Cancer have released a new and very funky web-based platform for Young Adults with cancer. This is where I will now be doing my blogging plus adding heaps of other stuff especially for Young Adults with cancer in Australia.

http://myplanet.planetcancer.org/profile/nikki

Check it out... click on the link above, when my page comes up.... scroll down and find the Australian Network group link and click. this will enter you into all the Australian related discussion topics, plus provide you with info about my project and lots of information.

See you on PLANET CANCER....

Nikki

Wednesday, January 16, 2008

recent update for YA

Hi guys, just a quick progress report on the YA project so you can see where I am up to...

  1. This year (2008) I am doing honours year at uni to research the needs of YA diagnosed with cancer aged 25-40 years. (Currently tossing up the idea of extending the age to 44 years. *** I am interseted to find out who thinks people 40+ with cancer have similar issues to the 25-40 years ... or do you think their life issues and interests are possibly more related to older people (age 50+)?). I am leaning towards including the 40+ age group... I have asked many of my friends who have turned 40, and they have answered that they would like to be included as they want to live life to the fullest, just like us younger cancer survivors.
  2. Produce a report from this research study to increase the information from this age group.
  3. This report I hope will help me to gain funding to run a comprehensive web-based support service for YA,
  4. and run some retreats - possibly up here in beautiful Byron Bay (where I live).
  5. Working with the cancer council on setting up a YA discussion forum.
  6. Scheduled to present the YA issue at the Cancer Council of NSW's RAN 2008 Conference.

...thats about it for now...

I will endeavour to keep you posted on any progress, until then drop me a line or email me your thoughts and ideas!

best Nikki

Monday, September 10, 2007

Bereaved people who have had a family member or loved one who died from cancer - your top 5 priorities

Please list your top 5 priorities that you would like to have this service providing...
1.
2.
3.
4.
5.

Thursday, September 6, 2007

Friends of YA cancer patients - top 5 priorities

Please list your top 5 priorities that you would like to see this service incorporating...

1.
2.
3.
4.
5.

Health Professionals - top 5 priorities

Please list your top 5 priorities that you would like to see this service incorporating...

1.
2.
3.
4.
5.